Jonathan Pitre

Jonathan Pitre was a Canadian with a rare genetic mutation called recessive dystrophic epidermolysis bullosa (RDEB), which causes external and internal blistering across the body.

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Profession :

Activist

Birthday :

June 2, 2000

Star Sign :

Gemini

Death Date:

April 04, 2018

Age :

17

Birthplace :

Canada

Jonathan Pitre, a Canadian blogger, motivational speaker, and advocate, was known for raising awareness about Epidermolysis bullosa (EB), a rare skin disease affecting both the skin and internal organs. Often referred to as “The Butterfly Child,” Pitre chronicled his journey with EB through his blog, worked to raise funds for research, and participated in various news programs and documentaries. His advocacy efforts earned him several awards, including the Meritorious Service Decoration from the Governor-General of Canada. In addition to his blog, Pitre authored a memoir titled “Butterfly Child.” Born with a rare genetic mutation called recessive dystrophic epidermolysis bullosa (RDEB), he experienced external and internal blistering throughout his body.